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LDR06302cmm u2200913Ki 4500
001000000316880
003OCoLC
00520230525181359
006m d
007cr cnu---unuuu
008200702s1996 nju ob 001 0 eng d
020 ▼a 9780691214702 ▼q (electronic bk.)
020 ▼a 0691214700 ▼q (electronic bk.)
020 ▼z 0691027838
020 ▼z 9780691027838
020 ▼z 0691050791
020 ▼z 9780691050799
035 ▼a 2461284 ▼b (N$T)
035 ▼a (OCoLC)1162817285
037 ▼a 22573/ctv10wz5f1 ▼b JSTOR
040 ▼a JSTOR ▼b eng ▼e rda ▼e pn ▼c JSTOR ▼d N$T ▼d 248032
049 ▼a MAIN
050 4 ▼a BF789.D4 ▼b B635 1996eb
06014 ▼a 1996 L-823
06014 ▼a WI 820 ▼b B658i 1996
072 7 ▼a MED ▼x 069000 ▼2 bisacsh
08204 ▼a 155.9/16 ▼2 22
084 ▼a 77.21 ▼2 bcl
1001 ▼a Bluebond-Langner, Myra, ▼d 1948-
24510 ▼a In the shadow of illness : ▼b parents and siblings of the chronically ill child / ▼c by Myra Bluebond-Langner.
260 ▼a Princeton, N.J. : ▼b Princeton University Press, ▼c 짤1996.
300 ▼a 1 online resource (xvii, 302 pages)
336 ▼a text ▼b txt ▼2 rdacontent
337 ▼a computer ▼b c ▼2 rdamedia
338 ▼a online resource ▼b cr ▼2 rdacarrier
504 ▼a Includes bibliographical references (pages 275-294) and index.
50500 ▼t The Impact of Cystic Fibrosis on Well Siblings -- ▼t Approaches to the Study of Well Siblings -- ▼t An Ethnographic Approach -- ▼t A Framework for Analysis -- ▼t Portraits in Waiting: Nine Families -- ▼t The Daleys -- ▼t The Shermans -- ▼t The Farringtons -- ▼t The Campbells -- ▼t The Reynoldses -- ▼t The Chases -- ▼t The Woodwards -- ▼t The Fosters -- ▼t The Baileys -- ▼t Containing the Intrusion -- ▼t Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders -- ▼t Issues and Strategies -- ▼t Strategies, Normalcy, and Control -- ▼t Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition -- ▼t Well Siblings' Views -- ▼t Formation of Well Siblings' Views -- ▼t Well Siblings' Relationships with Parents and Ill Siblings -- ▼t Resources and Communication -- ▼t The Well Siblings' Position in the Family -- ▼t Afterword: Meeting the Needs of the Well Sibling -- ▼t General Guide lines for Clinical Intervention -- ▼t Communication in the Family: The Case for "Shuttle Diplomacy."
520 ▼a The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness - from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
5880 ▼a Print version record.
590 ▼a Added to collection customer.56279.3
650 0 ▼a Death ▼x Psychological aspects ▼v Case studies.
650 0 ▼a Parents of terminally ill children ▼v Case studies.
650 0 ▼a Brothers and sisters ▼x Death ▼x Psychological aspects ▼v Case studies.
650 0 ▼a Terminally ill children ▼x Family relationships ▼v Case studies.
650 0 ▼a Cystic fibrosis ▼x Psychological aspects ▼v Case studies.
650 1 ▼a Parents of terminally ill children ▼x Case studies.
65012 ▼a Cystic Fibrosis ▼x psychology. ▼0 (DNLM)D003550Q000523
65022 ▼a Parent-Child Relations. ▼0 (DNLM)D010287
65022 ▼a Sibling Relations. ▼0 (DNLM)D012801
650 3 ▼a Terminally ill children ▼x Family relationship ▼x Case studies.
650 6 ▼a Mort ▼x Aspect psychologique ▼x Cas, E?tudes de.
650 6 ▼a Parents d'enfants malades en phase terminale ▼x Cas, E?tudes de.
650 6 ▼a Fre?res et s흹urs ▼x Mort ▼x Aspect psychologique ▼x Cas, E?tudes de.
650 6 ▼a Enfants malades en phase terminale ▼x Relations familiales ▼v Cas, E?tudes de.
650 6 ▼a Mucoviscidose ▼x Aspect psychologique ▼x Cas, E?tudes de.
650 7 ▼a 77.21 humanistic psychology. ▼0 (NL-LeOCL)077597729 ▼2 bcl
650 7 ▼a Brothers and sisters ▼x Death ▼x Psychological aspects. ▼2 fast ▼0 (OCoLC)fst00839674
650 7 ▼a Cystic fibrosis ▼x Psychological aspects. ▼2 fast ▼0 (OCoLC)fst00886193
650 7 ▼a Death ▼x Psychological aspects. ▼2 fast ▼0 (OCoLC)fst00888643
650 7 ▼a Parents of terminally ill children. ▼2 fast ▼0 (OCoLC)fst01053520
650 7 ▼a Terminally ill children ▼x Family relationships. ▼2 fast ▼0 (OCoLC)fst01147898
650 7 ▼a Kind ▼2 gnd ▼0 (DE-588)4030550-8
650 7 ▼a Chronische Krankheit ▼2 gnd ▼0 (DE-588)4010176-9
650 7 ▼a Familienangeho?riger ▼2 gnd ▼0 (DE-588)4113507-6
650 7 ▼a Psychische Belastung ▼2 gnd ▼0 (DE-588)4176184-4
650 7 ▼a Bewa?ltigung ▼2 gnd ▼0 (DE-588)4195461-0
65017 ▼a Chronische ziekten. ▼2 gtt
65017 ▼a Kinderen. ▼2 gtt
65017 ▼a Gezin. ▼2 gtt
65017 ▼a Medische psychologie. ▼2 gtt
650 7 ▼a MEDICAL / Pediatrics ▼2 bisacsh
655 2 ▼a Personal Narrative. ▼0 (DNLM)D062210
655 4 ▼a Case studies.
655 7 ▼a Case studies. ▼2 fast ▼0 (OCoLC)fst01423765
655 4 ▼a Electronic books.
77608 ▼i Print version: ▼a Bluebond-Langner, Myra, 1948- ▼t In the shadow of illness. ▼d Princeton, N.J. : Princeton University Press, 짤1996 ▼z 0691027838 ▼w (DLC) 96006800 ▼w (OCoLC)34355618
85640 ▼3 EBSCOhost ▼u http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=2461284
938 ▼a EBSCOhost ▼b EBSC ▼n 2461284
990 ▼a 관리자
994 ▼a 92 ▼b N$T